Rare Diseases South Africa (RDSA) is a registered Non-Profit Organisation assisting all patients affected by rare diseases to access life-saving treatment and supportive care for improved quality of life.


To facilitate advocacy and engagement between those with ability to prevent, intervene, treat and provide supportive care for patients and families affected by rare diseases living in South Africa.


  • Providing support and practical aid to individuals and families impacted by rare diseases.
  • Creating awareness about rare diseases by providing information to individuals, families, healthcare professionals, and the general public.
  • Establishing a network to connect all stakeholders who have the ability to improve the quality of life of our patients.

To find out more, visit the RDSA website